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Coping With Celiac Disease

It can be difficult for kids to understand and manage celiac disease or gluten intolerance, and it might be just as hard for parents to watch their children struggle. Here are my top ten tips for parents to help their children cope at any age. If your child is at a birthday party and everyone is eating cake, it might be tempting for him or her to have some as well—especially if other kids are pressing your kid to have a piece of cake with them.

If needed, send a gluten-free treat along for your child to enjoy in these social situations. Come up with scenarios and scripts so that your kid can be prepared to handle different situations, and can feel like an actor at the same time. Maybe your kid is a detective trying to find clues that something may be unsafe to eat.

Practice spotting safe and unsafe products on grocery shopping trips. Being different can be hard for younger children. Boys and girls will follow Celia Kaye as her inability to eat wheat unleashes her imagination and takes her on adventures.


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If your kid needs a gluten-free hero, introduce him or her to Celia Kaye. Educate your older kids about the more scientific aspects of celiac disease. Younger kids should be educated as well—especially about the basics.

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Give your kids the gift of knowledge and let them become the expert. They will be more likely to take an interest in their own dietary needs if they are well-informed. Or maybe you try to talk to your child, but your emotions get in the way of your intent to stay positive. Perhaps your child just needs someone to identify with. The Celia Kaye Mentorship Program offers free minute Skype chats, during which your child can speak freely about how the disease has impacted his life, and can ask any questions he might have on his mind.

There are a lot of foods that need to be avoided after a celiac diagnosis, and much of the emphasis is placed on this. Show your child the wide variety of things he can eat—some of which he might not have even known existed.

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You and your child will both be more comfortable knowing that she is attending a college that is knowledgeable about gluten-free needs. Allocate a special section of your kitchen and fridge as a gluten free zone, off limits to others in the family. This zone should include:. Check what will be served when your child is invited out, and send along substitutions when necessary. Be patient, understanding, and extra creative when your child feels anxious about being left out of the advertised food fads. Talk to the teacher before school starts.

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Ask the teacher to have every adult who will be serving as an instructor or an aide read this information before school starts. Be prepared for birthday and holiday treats. Bake chocolate and vanilla cupcakes at the beginning of the year and freeze them in individual bags.

These can be quickly defrosted and decorated with frosting for special occasions. Get a schedule of which parents are supplying snacks. Then call the snack parent a few days in advance to see what they are bringing so you have time to prepare something similar but gluten free. This way, your child will have a special treat if a special occasion arises that you were not aware of. Visit the cafeteria at the beginning of the school year and read the labels of items that you feel may be gluten free. Call the companies to check if you have any questions, then tell your child which items are safe choices.

Although main dinner items will likely be too risky, the opportunity to go to the cafeteria with friends may be important, and this will ensure your child has an option or two. Some kids feel comfort in having others know that they have celiac disease.


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Other children prefer to handle situations more quietly and confidentially to avoid being singled out. Focus on the positive aspects.


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  • You may have an opportunity to show other parents that it is possible to choose healthier snacks rather than always supplying cupcakes. If the teacher is receptive and you have time , do some research and create a small cookbook of unique snack ideas for the teacher to circulate.

    Celiac disease and the gluten-free diet

    When your child is first diagnosed: